Resources

Click the links to jump to the desired section:

Parkinson Education Program (PEP) offers monthly meetings with speakers, focused on the topic of Parkinson’s disease. PEP sends out a monthly newsletter as well. You can find them on Facebook.

The Ohio Parkinson Foundation Northeast Region (OPFNE) is a 501 3(c) non-profit organization committed to improving the quality of life for those affected by Parkinson’s Disease (PD)  This local  foundation offers an annual free educational symposium, supports the efforts of many charitable organizations involved in the development of wellness programming for Parkinson community, and provides funding for local PD research. The Foundation also maintains contact and general information for the Parkinson Support Groups in the 16 counties that it serves and  operates a website featuring listing  for all local events; exercise, dance, and boxing classes; local and national resources for information, and services in NE Ohio.  Visit their website at https://www.ohparkinson.com/

The Brian Grant Foundation provides tools to improve the lives of people with Parkinson’s. Through exercise, nutrition and a supportive community, the foundation strives to help people manage symptoms, maintain overall health and prevent other serious illnesses. Click here to view upcoming webinars and events.

The Davis Phinney Foundation for Parkinson’s provides helpful resources related to Parkinson’s disease, including the “Every Victory Counts” manual. Click here to view a recording of the Davis Phinney Foundation’s Women and Parkinson’s webinar. Click here to view a recording of the Davis Phinney Foundation’s Men and Parkinson’s webinar.

Parkinson & Movement Disorder Alliance is an independent, national nonprofit dedicated to help people impacted by movement disorders to learn, live more fully and spark meaningful connections around them. 

The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community. To view upcoming webinars and events, visit www.parkinson.org.

OPFNE maintains contact information for support groups located in 16 counties of Northeast Ohio. Click here to view a list of support groups near you.

BEYOND PD 201 is a free, online, and peer-led Zoom support group intended for InMotion clients who have taken PD 101 and 201 classes at InMotion, but all people with PD, their care partners and families are welcome. The group is facilitated by fellow InMotion clients, and meets on Tuesday evenings at 5:30 (EST) on Zoom, with an expert speaker once a month. Please contact: James Juknialis (216-486-3597, [email protected]) or Sharon Shaffer (216-225-3439, [email protected]) for further information and the Zoom link to the group.

Support for Dementia Care Givers

American Parkinson Disease Association: Medications To Be Avoided or Used with Caution in PD

Cleveland Clinic Center for Neurological Restoration – Cleveland Clinic’s Parkinson’s Disease Program is designated a Center of Excellence by the Parkinson’s Foundation, exemplifying the standard of care for Parkinson’s disease management. Individuals with Parkinson’s disease benefit from the comprehensive, integrated approach to patient care provided by our multidisciplinary team of experts which includes medical and surgical subspecialists; physical, speech and occupational therapists; and behavioral health specialists.  The Cleveland Clinic VIA website lists many of our actively enrolling clinical trials across the institution. You can filter studies by location, institute, etc., or search by specific health conditions, such as Parkinson’s disease. CLICK HERE for more information.

Clinical Research Study for Volunteers with Parkinson’s Disease – University Hospitals Neurological Institute & Case Western Reserve University School of Medicine. For more information, please contact Ashley Hawkins at 216-844-1800 or [email protected].

PRISM Early-Stage Parkinson’s Research Study. For more information about this study or to see if you prequalify, call 888-497-4890 or visit PrismPDStudy.com.