Resources for People with PD & their Families

Learn more about expert and community resources available to people with Parkinson’s disease and their families.

Exercise and Wellness Resources

Improve your Motor & Non-Motor Symptoms

Improve your motor & non-motor symptoms with InMotion’s program (printable PDF)

Exercise Recommendations from the Parkinson’s Foundation

Exercise Recommendations from The Parkinson’s Foundation

 Resources for Daily Living

How to Share a Diagnosis with Friends & Family

How to Share a Diagnosis with Friends and Family (article published by Brain & Life)

Occupational Therapy Tip Sheets

Occupational Therapy Tip Sheets – from CSU occupational therapy student Ashley Adamczewski

Resources and Support for Older Adults Living Alone: A Comprehensive Guide

Resources and Support for Older Adults Living Alone: A Comprehensive Guide (2023) Published by the National Council on Aging.

Parkinson’s Disease Organizations

Parkinson’s Education Program (PEP)

Parkinson Education Program (PEP) offers monthly meetings with speakers, focused on the topic of Parkinson’s disease. PEP sends out a monthly newsletter as well. You can find them on Facebook.

The Ohio Parkinson Foundation Northeast Region (OPFNE)

This local foundation offers an annual free educational symposium, supports the efforts of many charitable organizations involved in the development of wellness programming for Parkinson community, and provides funding for local PD research. The Foundation also maintains contact and general information for the Parkinson Support Groups in the 16 counties that it serves.

The Brian Grant Foundation

This foundation provides tools to improve the lives of people with Parkinson’s.

The Davis Phinney Foundation for Parkinson’s

The Davis Phinney Foundation for Parkinson’s provides helpful resources related to Parkinson’s disease, including the “Every Victory Counts” manual.

Parkinson & Movement Disorder Alliance

Parkinson & Movement Disorder Alliance is an independent, national nonprofit dedicated to help people impacted by movement disorders to learn, live more fully and spark meaningful connections around them.

The Parkinson’s Foundation

The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure.

Support Groups and Mental Health Resources

Ohio Parkinson Foundation Northeast Region

OPFNE Support Groups

Memory Care and Dementia Resource Center 

Support for Dementia Care Givers

Assisted/Independent Living Resources

InMotion

https://beinmotion.org/wp-content/uploads/2023/05/Assisted-Independent-Living-Resources.pdf

Medical/Pharmaceutical Resources

American Parkinson Disease Association

Cleveland Clinic Center for Neurological Restoration

Cleveland Clinic’s Parkinson’s Disease Program is designated a Center of Excellence by the Parkinson’s Foundation, exemplifying the standard of care for Parkinson’s disease management. Individuals with Parkinson’s disease benefit from the comprehensive, integrated approach to patient care provided by our multidisciplinary team of experts which includes medical and surgical subspecialists; physical, speech and occupational therapists; and behavioral health specialists.  The Cleveland Clinic VIA website lists many of our actively enrolling clinical trials across the institution. You can filter studies by location, institute, etc., or search by specific health conditions, such as Parkinson’s disease. Click here for more information.

Clinical Trials/Research Studies

Clinical Research Study for Volunteers with Parkinson’s Disease

University Hospitals Neurological Institute & Case Western Reserve University School of Medicine. For more information, please contact Ashley Hawkins at 216-844-1800 or Ashley.Hawkins2@UHhospitals.org.

PRISM Early-Stage Parkinson’s Research Study

For more information about this study or to see if you prequalify, call 888-497-4890 or visit PrismPDStudy.com

Financial & Other Forms of Assistance

Transportation Resources

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